Extreme old age isn’t easy, not one bit. Mum carries it with great dignity but these few days without a bed rail have taught me so much humility. We will all at some point need adaptations (if we’re lucky) and should probably plan ahead. I’m chastened by the unravelling that can take place for want of one simple adaptation.
What I do have is a complex relationship with masking – which I want to be honest and hopefully nuanced about. Stigma exists, often we don’t have a choice (those of us who’ve learned masking as an adaptation). For myself as a bilingual person, I have come to think of masking as a bilingualism wrought by the necessity of living between worlds with different cultures.
I hope to write more about masking and caring as my situation evolves.
This blog feels like the place to be right now. I can be quiet. I can think my own thoughts more clearly. But when I think about the need for sanctuary my heart stops.
So I’m finally returning. I can’t help wondering what Abuela (grandma) would say?
I wish too that my father could know that I am going back to Catalonia, via the beaches of Barcarès and Argèles (where he was held in refugee interment camps), to retrace his exile journey to England in 1939.
Like Hansel and Gretel before me I left some breadcrumbs, but still I’m rather awestruck that I could have missed working my way back to this somewhat seminal moment in the evolution of a project called The Museum for Object Research.
With my art practice I witness. It’s all I can do.
Yes, yes, yes…okay, okay. Alright. I boil washed another jumper! It’s becoming a thing – a metaphorical thing. This post is about access and exclusion. It’s about a stripy jumper made out of scratchy wool that doesn’t fit. Like that awful Xmas gift (that keeps on itching) – you really don’t want it but you haveContinue reading “When only autism will do.”
Perhaps we underestimate just how hard we’re working everyday to keep afloat in a world which does not support our divergent neurologies?
The other day I imagined the difficulty managing information flow (of all kinds including sensory) and coordinating responses in autism as the want of a traffic cop at an intersection during rush hour.
We’ve had such a brilliant response to the work – now we need to find it a bigger stage.